By Dr. Jenna Henderson
For many dialysis patients maintaining their health is their main focus in life. Dialysis can be like a job. You get evaluated. You have to show up on time. There can be red tape to deal with. Then outside the clinic you have to manage your diet, manage your pills, address insurance issues, visit various other doctors and specialists as needed, and deal with fatigue, the awful fatigue. It’s no wonder that so many dialysis patients don’t work. Dialysis Patient
Less than a quarter of all dialysis patients are employed. Many just feel too tired and overwhelmed. It’s hard for a dialysis patient to explain the fatigue of having your blood drained for 3-4 hours to someone who’s never experienced it. In a culture that values work and productivity, the dialysis lifestyle can seem like idle time to someone who doesn’t understand it. I’m sure I’m not the only dialysis patient who has heard, “No seriously, what do you do all day?”
Some dialysis patients view this time as a temporary break in their employment and expect to be fully employed once they’re transplanted. Yet pre-transplant employment is one of the biggest predictors of post-transplant employment. The longer you’re out of the game, the harder it can be to get back up again.
When I first went on dialysis I was lucky enough to work for a company that let me set me own hours as I felt able to work. Not all companies are that flexible and understanding. Spending some extra time on my non-dialysis days, the boss could see I was eager and doing my best to pull my weight in the company.
Working on dialysis was hard, but it came with rewards. The first and most obvious were financial rewards. But work kept my mind off my health. The more I focused on work, the fewer thoughts about dealing with a terrible disease crept into my mind. I had a reason to get up in the morning and put on some dress clothes. Over the past 9 years on dialysis it has gotten easier. What started as part-time work led to full-time work, then graduate school, and finally running my own business.
Even before kidney disease, I was never a high-energy person. Working on dialysis didn’t come easily, but it definitely came with rewards. These are some of the ways I’ve found to balance work and dialysis.
- Do work you love.
Not all work is equal. There are jobs and there are careers. A career brings personal fulfillment.
Why would dialysis patients rush back to work if they hate what they do? Let’s face it a lot of people hate their jobs. A Forbes poll in 2013 found that 70% of Americans hate their jobs. Fatigue is a lot worse when you have no enthusiasm for what you do.
It may seem easy to stay where you’re planted rather than rock the boat or start a new career at this point in your life, but is the work you will want to be doing a decade from now?
Take stock of what’s important to you. Are your interests the same now as they were before you started dialysis? Is it good to feel like your old self or do you need a change?
- Pace yourself.
Recognize that your stamina isn’t what it used to be. An eight hour work day will probably be too much for you right away. Start with a half day and gradually work your way up. Even now I start at 9 a.m. rather than 8 a.m. when I’ve had dialysis the night before. Know you’re going to have good days and bad days. Allow some time to rest and recover after days when you push.
To read the rest of the article, please visit the Renadyl website at https://blog.renadyl.com/dialysis/going-work-dialysis-patient/